I'm a knitter, spinner, writer, poet, teacher, and mother. But all of that is changing quickly. This blog is about life with chronic pain from rheumatoid arthritis and fibromyalgia. It's about leaving work and going on disability. It's about possibly becoming an empty nester. But mostly it's about knitting. I will design patterns in response to life and all of the unexpected changes that it brings.
Friday, June 2, 2017
The Price of Dancing
Three days home from my camping trip, Sunday, was spent mostly in bed. I went to bed with the best church-going intentions, but after getting up and feeding the pets, I ran out of energy. A shower wasn't likely, let alone getting myself ready for nine o'clock service.
Exhaustion for me is normal and expected. It is the price I must pay for having fun while chronically ill.
My parents planned a leisurely outing. I did my best to take it easy and get enough rest. I sat most of the time and spent each afternoon lying around. The trip was less physically demanding than two days of teaching or four part-time days of any work I can imagine.
Now, a week later, I'm more functional, but still hurting and dragging more than usual. The current feeling (that the mitochondria of my cells have all shut down at once) is a reminder that despite improvements on the current miracle drug, I am in no condition to go back to work.
But for now, my energy, and usefulness, is measured not by teaspoons, but with an eyedropper. I am still trying to determine the best application for those sporadic drips.
Was my trip to the desert worth a week of exhaustion and nausea-inducing pain? Absolutely! I have to break free sometimes or life is not worth living. I just can't afford to do it very often.
I have just under two months to recover before the next adventure--A Shakespeare festival in July.
I finished some knitting before my trip and some during it, so this week's slow knitting won't be apparent yet. Above is a luxuriously soft and lightweight summer scarf made of silk and linen in a basic lace mesh. It is already listed in my shop.
I finished this scarf right before I left and should have brought it along to prevent sunburn on my neck. (I bought a bandana.)
I also finished a hat that still needs to be photographed outdoors to create a good picture for the Etsy listing.
On the trip, I worked on a metallic-looking scarf, for men or women, out of wool and tencel (a type of rayon.) It matched the rocks in the desert, and will match many coats and sweaters. It is also listed in my shop.
My final on-trip project is a blanket. I don't recommend knitting a blanket, even a small one, on a hot-weather trip. It did spend a lot of time warming my already warm lap. Also it is made from Red Heart Light and Lofty, which is both very acrylic and annoying to work with. But I am happy with the results. I have already figured out where it will be going for Christmas.
During this recovery week, I have knit a hat, a purse, and part of a lace wrap. I've also dreamt of pictograph-inspired clothing. I'll update you next week.
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I love will work for radishes. By the way I have worked for lots less. :)ReplyDelete